Things are going pretty well; Rebekah had inpatient chemo 2 weeks ago the chemo made her hyper and she actually felt pretty good except when she was actually throwing up. She ended up having to stay longer to get her emesis under control well enough to come home. She was still on 2 drugs for the nausea when we came home so I had to give her meds every 3 hours around the clock. And we had a third to help when that just wasn't enough. It was a long week. Then we had one day of Vincristine (the easiest chemo, lol) the next week. We asked the doctor and got permission to go visit her cousin who she hadn't seen in months, we had a fun but short visit. She got too sleepy to stay. She threw up right after we got home, and then ate a small snack. The next night (Tuesday 4/23) she spiked a fever and we had to go into the hospital, labs were drawn to see if an infection was to blame and what kind of antibiotic would work best, meanwhile they wasted no time in starting her on a good broad spectrum antibiotic and kept that up because the results came back negative. We spent the required 48 hours and then were sent home having to give her the antibiotics through her port every 8 hours and watching her temp.
This week she was/ is supposed to have 5 days of inpatient chemo, this got pushed back from Monday to maybe starting on Wednesday because of the fever and the fact that her counts just weren't where they should have been. I took this as a longer opportunity to get her weight back up but as we all know by now Rebekah threw up her NG tube while we were in the hospital and I stupidly thought she might be able to get the calories on her own. I was very wrong and after spending all weekend begging her to eat enough; we decided to put the tube back in. This did not go well and in fact after wasting an hour and getting puked on from my hair to my feet, we did not actually get the tube back in. Tomorrow a home health nurse is coming to draw labs to see if Rebekah can have chemo on Wednesday and I will have her place the tube at that time.
Oh I didn't mention this but we have been planning on baptizing Joey and everything seems to be falling through with that, my wonderful step mom is very sick and she can't fly or be left alone (not that I would want her to be) so my father who was planing on doing the baptism can't come. My sister in law has a conflict in her schedule and we had to work out the days so that at the very least Rebekah won't be in the hospital. Do I get to scream now? no wait, I can't I spent most of this weekend talking to a little girl about eating and yelling at boys now my throat hurts.
This is a pic from December, blue kool-aid. Can't we just go back to this time?
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