Getting into the routine

      This week was pretty low key. Not to say that there was nothing going on, we are still plenty busy keeping pain in check, making sure Rebekah is peeing, trying to make her eat, giving her the shots for her blood clot (which she frequently reminds me and Shawn that she hates), taking care of the feeding tube (too bee), helping Rebekah walk around. Oh and we had 2 sick kids this week, Victor was sick on his Birthday and we sent him to stay with Shawn's mom and dad who were so awesome to take him in and care for him with the help of my sister in law. (It's such a blessing to have his family close by, even though I know my neighbors would be more than willing to help out, it's just easier to impose on family :D. ) We brought Victor home mid week and quarantined him and Joe in what was Jonny and Victor's room only allowing them out to use the restroom and clean their teeth.
      We did go to a movie today, yes I know it's Sunday, but here in Utah that also means less people and it's flu and RSV season so that works out to be the best day to take her. Rebekah's ANC (Absolute Neutrophil Count) a measure of how her immune system is functioning, was 3.6 on Friday and that's awesome so we felt pretty safe taking her out and she had been begging to see The Croods. It was pretty good and she ate some candy and popcorn which made me happy.
      Rebekah and I are still trying to figure out how best to give her the shots she needs 2 times a day. She has been very cooperative and doesn't fight me about it but she does tell me how much they hurt and she wished it didn't. We are also working on ways to make her more comfortable with the port and the NG tube. Rebekah and I sometimes butt heads and yell at each other we are both so frustrated with how things have changed so much so quickly. She has been crying more and I know it's because of all the changes. I sometimes worry she is getting depressed then the next moment or day she is laughing at something or just coping better. She is one tough cookie.
God bless you all, and Good Night