Sunday, March 3, 2013

waiting for poop

3/2
Rebekah is going to be taking 8 types of chemo drugs at different times and in different combinations throughout the next year with a few short breaks here and there. Tonight is her second night of chemo. Yes, they started her the same night that we sat down and got our official diagnosis. Last night I was home with the boys and Shawn got to be here for the best side effect ever..... diarrhea.  Now; Rebekah's last poop was on Monday after the last enema I was told to give her for her constipation (insert sarcastic laugh here). Shawn told me just as I was getting ready to come up that she had " explosive" diarrhea last night and that in addition to that the poo can't be left on her skin long because it contains some of the chemo drugs and could do damage to her skin. So I am gearing up for some serious crap works and having to change my big girls diapers. oh and he told me that it was really smelly. They gave her the first type of chemo she gets, Temozolomide, she gets to have it mixed with some apple juice (she has told us it tastes horrible, but she still takes it). a few minutes later she rips one and there is a smell I have never before in my life conceived would erupt from someone I get birth to. I,  a woman who prides herself for not having a gag reflex, kind of gagged a little. I told the nurse I was worried she had soiled herself and proceeded to check to the objection of my daughter, who told me she had not pooped. She hadn't yet. Then the nurse informed me that it was the next chemo that she was getting ready to give ( she has to cover herself and wear special gloves, and mask just to put the stuff into my little girls veins) the VinCRIStine and Irinotecan that cause the diarrhea. So in my mind I just thought "I am so going to hurl if it smells like this fart just did". I get on my purple gloves and get ready for the avalanche of foul smelling excrement. The nurse starts giving her the chemo first the V one then the Irin one and leaves since it takes an hour and 15 mins to transfuse. She comes back and I still have my gloves on waiting..... and then it happens...."Mom, I need you to change me, but don't wipe on my caf ader." The nurse is running something through Rebekah's port to rinse it out and I am the only one who can bravely step up to the plate and clean up my little boo's horribly foul poop. (I am hoping to prove to be as manly as my husband was last night, he cleaned up everyone of her poops with some help from the nurse). So I do my power pose (those who have been to time out for women know what I mean) gearing up to clean her and proceed it's not as bad as I thought it would be, I can do this, Rebekah was displeased with my having to clean near ad around her catheter but it got done and she was all clean. The nurse takes her vitals and then leaves Rebekah falls asleep and so do I. I wake in the middle of the night thinking that I missed a poo and her skin would be a mess, the nurse ( who requested to be with Rebekah again tonight after being with her last night) tells me she did change her one time but that was it and that she had started her on the anti-diarrhea meds earlier in the day....things that are good to know before you freak out.

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