Home

We got to bring Rebekah home late yesterday afternoon. I had been overwhelmed by the idea of how much care will be involved with keeping her well and plumping her back up between the chemo cycles.  She was in good spirits and was enjoying having her brothers around her. I was trying to see if she really needed her zoferan and it seems she does, so she tummy wasn't feeling that great today. I gave that to her and she dozed off, she is napping as I am typing. I woke up with a sore throat and have been using a mask and washing my hands a ton. I am not sure if I am sick, but I can't take the chance with my sweet angel. I am hoping when she wakes that she will feel more like walking and eating. My least favorite thing about having her home is having to give her her shots, I had to have a talk with her today about how we do it and then it's over and we don't need to worry or freak out or cry about it as that will only make us feel bad for longer. I have decided not to let the boys be in the room when I do it because when she looks at their sad faces she cries and their pity afterword isn't helpful for moving forward with the day. Rebekah is moving around a lot more then she was at the hospital even trying to get up and get food by herself (this doesn't really go well but I admire her efforts.) I haven't mentioned; one of the chemo drugs she has to take and the one she will get the most often causes foot drop. She had already been having a hard time because she walked exclusively on her tip toes for over a month so between that and the surgery and tubes and wires keeping her in bed for a week, she's pretty weak and is having to learn balance all over. She has adjusted to having the catheter better then the last time. When they put it in on Friday night the nurse said she didn't feel resistance at the bladder like when it was placed the first time. I am hopeful that this means that the tumor is getting smaller or more gelatinous as the doctor I met last weekend told that they do before the body starts removing the dead cells, he went into some interesting details  that put Rebekah to sleep. (That was a doctor who mostly focus on research and only does some clinical days in the hospital.) Anyway;  We are optimistic that the tumor will shrink rapidly and we can get that thing out  so she can start feeling a bit more normal. Oh and we are also hoping that when the tumor shrinks Rebekah will regain her ability to feel and control her bowels.